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Dementia Resources
Welcome to the Dementia Resources page. This page is being added to daily--so please check back often! Here you will find a variety of resources for individuals with dementia, caregivers, family members, community members, and professionals all in one place. We encourage you to also check out our Resource Guide above for additional resources. Click the links below to learn about all the areas of dementia support.

What is Dementia?

Watch the videos below to learn a little bit about dementia and  Alzheimer’s Disease (the most common cause, but not the only cause, of dementia).

 

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Resources for Individuals with Dementia

Getting a Diagnosis, Memory Clinics and Memory Screens

If you watched the above videos, you learned that dementia is not a diagnosis. Dementia is a term for a set of symptoms and there are 85-90 different causes or types of dementia. Each is very different, responds differently to medications and treatments, and may affect you differently. In addition, some are even reversible! That is why it is very important to find out what specific type of dementia you have. In addition, early and timely diagnosis of the cause is very important. It allows you and your family to plan, maximize care and treatments, and make decisions regarding your future and end of life wishes together. How do you get an accurate and timely diagnosis? When you have heart problems you go to a cardiologist--a specialist--so when you have issues with your brain you act no differently. Memory Clinics are special clinics equipped with the specialist required to help you figure out what specific type of dementia you have.

We have included a list of local Memory Clinics in our ADRC Resource Guide in the Alzheimer's Disease, Dementia and Memory Loss section. You can also find a list of Memory Clinics statewide through the Wisconsin Alzheimer's Institute. The Alzheimer's Association also has a webpage of information dedicated to explaining the diagnosis process, questions to ask, and the tests and approach used for diagnosing Alzheimer's Disease. Click here to go to that page.

If you have concerns about your memory but aren't quite sure if it is an issue or if it is a normal part of aging you can get a Memory Screen at the ADRC of Northwest Wisconsin. Call us at 877-485-2372 to schedule an appointment. A Memory Screen is a short test our staff can do with you that helps determine if further evaluation of your memory concerns is needed. It is never a bad idea to talk with your primary care physician any time you have memory concerns.

Alzheimer’s Association Website

The Alzheimer’s Association provides information, resources and education on Alzheimer’s disease and other dementias.

 Alzheimer’s Association: I Have Alzheimer's Webpage

Visit the I have Alzheimer’s Webpage within the  Alzheimer’s Association website to learn information you need to know after being diagnosed with  Alzheimer’s disease or another type of dementia.

 Alzheimer’s Association Taking Action Workbook

Go through the Alzheimer’s Association's Taking Action Workbook to be better prepared for your journey ahead with  Alzheimer’s disease or another type of dementia. Learn what you can do to continue living your life safely. Be an active and informed member of your healthcare team and decide who else you want to include in this team. Think about, write down and discuss with your loved ones now about what you want your future to look like--future care, future home (be it your current home, an apartment, assisted living facility or nursing home), and end of life.

Memory Cafe

A Memory Cafe is a place for individuals to go who are in the beginning stages of dementia to socialize, have good conversation, participate in a fun activity or meet new people that are on a similar journey. They provide a safe, stigma free atmosphere for not only the individuals with dementia but also their family members and caregivers. At least one family member, caregiver or friend is asked to attend with their loved one with dementia. Note: A Memory Cafe is different than a support group. It is meant for people to hang up their hat of caregiver or person with dementia and just enjoy the social time. A support group is more focused on helping people find support, resources and information needed to live better with the disease or continue caring for someone with the disease.

Click here to download a flyer to print.

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Resources for Family Members and Caregivers

Dementia Care Specialist

The ADRC is proud to offer Dementia Care Specialist services.  The Dementia Care Specialist is a trained social worker, specializing in the needs and concerns of people living with dementia, their caregivers and family, and the professionals working with people who have dementia. Anyone who has concerns/questions about dementia or  Alzheimer’s can also utilize the DCS. A lending library of books and DVDs related to caregiving is also available. Click here to download a brochure about this service.

Getting a Diagnosis, Memory Clinics and Memory Screens

If you watched the above videos, you learned that dementia is not a diagnosis. Dementia is a term for a set of symptoms and there are 85-90 different causes or types of dementia. Each is very different, responds differently to medications and treatments, and may affect your loved one differently. In addition, some are even reversible! That is why it is very important to find out what specific type or cause of dementia you have. Early and timely diagnosis of the cause is very important also. It allows you and your loved one to plan, maximize care and treatments, and make decisions together regarding the future and your loved one's end of life wishes. How do you get an accurate and timely diagnosis? When you have heart problems you go to a cardiologist--a specialist--so when you have issues with your brain you act no differently. Memory Clinics are special clinics equipped with the specialist required to help you figure out what specific type of dementia you have.

We have included a list of local Memory Clinics in our ADRC Resource Guide in the Alzheimer's Disease, Dementia and Memory Loss section. You can also find a list of Memory Clinics statewide through the Wisconsin Alzheimer's Institute. The Alzheimer's Association also has a webpage of information dedicated to explaining the diagnosis process, questions to ask, and the tests and approach used for diagnosing Alzheimer's Disease. Click here to go to that page.

If you have concerns about your memory but aren't quite sure if it is an issue or if it is a normal part of aging you can get a Memory Screen at the ADRC of Northwest Wisconsin. Call us at 877-485-2372 to schedule an appointment. A Memory Screen is a short test our staff can do with you that helps determine if further evaluation of your memory concerns is needed. It is never a bad idea to talk with your primary care physician any time you have memory concerns.

Alzheimer’s Association Helpline

The  Alzheimer’s Association staffs a nationwide 24/7 helpline for individuals with dementia, family members, caregivers and professionals to call whenever they need. Call 800-272-3900 to speak with a trained professional any time to help you through any situation and connect you to needed resources. Difficult situations don't just happen Monday- Friday 8-4!

Powerful Tools for Caregivers

We work with the Wisconsin Institute for Health Aging to provide a 6 week evidence based workshop specifically for the family caregiver called, Powerful Tools for Caregivers. This workshop is focused on the health and well-being of the family caregiver providing tools and resources for the caregiver to thrive during their caregiving journey--and not just survive. Click here to be directed to our Healthy Aging programs page. Here you will find dates, times and locations of all upcoming workshops. At the bottom of the page, complete the form to let us know that you are interested in taking Powerful Tools for Caregivers and we will contact you when there is one in your area.

Caregiver Support Groups

Caregiver support groups can be a great way for family caregivers to find support and learn about available resources. We co-facilitate a support group open to all family caregivers. Please see the ADRC Resource Guide for a list of other support groups in our area in the Alzheimer’s Disease, Dementia and Memory Loss section.

ADRC Caregiver Support Group
Where: Peace Lutheran Church, Dresser
 
When: Third Tuesday of every month
 
Time: 2:00-3:30pm RSVP: Please RSVP by calling Barb Engelhart at the ADRC of Northwest Wisconsin at 877-485-2372. Light refreshments are served.
 
Click here to download a brochure to print.

Dementia Family Education

The  Alzheimer’s Association provides educational opportunities to family members and caregivers covering different topics related to dementia and caring for someone with dementia. Click here to find educational events in your area. There are also a number of trainings available online. Click here to see a list of all available through the  Alzheimer’s Association.

We partner with the  Alzheimer’s Association to bring programs to our area. Please see the News and Events page for a list of upcoming events in our area.

Memory Cafe

A Memory Cafe is a place for individuals to go who are in the beginning stages of dementia to socialize, have good conversation, participate in a fun activity or meet new people that are on a similar journey. They provide a safe, stigma free atmosphere for not only the individuals with dementia but also their family members and caregivers. At least one family member, caregiver or friend is asked to attend with their loved one with dementia. Note: A Memory Cafe is different than a support group. It is meant for people to hang up their hat of caregiver or person with dementia and just enjoy the social time. A support group is more focused on helping people find support, resources and information needed to live better with the disease or continue caring for someone with the disease.

Click here to download a flyer to print.

 Alzheimer’s Association Dementia and Driving

Click here to be directed to a portion of the  Alzheimer’s Association website that addresses Dementia and Driving. When do you know it's time for your loved one to stop driving and how do you initiate this difficult conversation with your loved one.

Lending Library

The ADRC provides access to educational resources through our Lending Library. This library currently includes resources for caregivers of individuals with dementia,  Alzheimer’s disease and memory loss. All resources are free of charge to rent and include some of which are also free to keep and others that can be purchased at a discounted rate if it appears you will continually need the resource. Please call our office to find out what materials are currently available and details about the lending library program. We also accept donations if you have educational materials (books,-DVDs, etc.) pertaining to caregiving that you are no longer using and that are of good quality. Please call the ADRC of NW WI at 877-485-2372 to find out how to donate or check out an item!

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Lending Library flyer

 

The Alzheimer's Association also provides a Virtual Library. The Green-Field Library, located at the home office of the Alzheimer's Association in Chicago, Illinois, is the nation's oldest and foremost library and resource center devoted to increasing knowledge about Alzheimer's disease and other dementias. "Visit" this library online at https://www.alz.org/help-support/resources/virtual_library .

Crisis Helplines

Helplines available for individuals with dementia in crisis and their family caregivers needing emergency connection and help, outside of normal business hours.

  • Polk County Mental Health Crisis Line: 888-552-6642
  • Burnett County Mental Health Crisis Line: 888-636-6655
  • Alzheimer's Association Helpline: 800- 272-3900
  • Emergency Services: 9-1-1

Local Resources

Looking for a local agency that provides in home help? Respite care? Personal emergency response systems? Find all of this, and more, in the ADRC Resource Guide. This guide is constantly being updated and revised to provide the most up to date and relevant information possible. Check it out on our website at the top of each page or stop into one of our offices to get a hard copy.

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Dementia Friendly Communities

Below are some resources to help you help your community become "Dementia Friendly". But first, why become Dementia Friendly? What is the difference between a community and a DEMENTIA FRIENDLY community? Watch the video below!

 

Dementia Friendly Business Training: Become a Dementia Friendly Business Today!

Training Dates and Times: The date, time and location of your Dementia Friendly Business Training is determined by what works best for you, your business and your employees. The Dementia Friendly Business Trainer will come to you and can present at multiple times to accommodate different shifts.

To become a Dementia Friendly Business, we ask that you:

  • Call the ADRC of Northwest Wisconsin at 877-485-2372 to schedule a training (s).
  • Ensure at least 50% of your frontline/customer service staff and management team attends the training.
  • Include a short online training into your new employee orientation.
  • Contact the ADRC of Northwest Wisconsin Dementia Care Specialist whenever you or your employees have questions.

Click here to download a flyer to print.

 

Polk and Burnett County Dementia Coalition

New to Polk and Burnett Counties is the Polk and Burnett County Dementia Coalition. Want to help make a difference? Join us for our next coalition meeting. Together we can enhance the quality of life for ALL people impacted by dementia in our communities. Meeting times will be posted here as they are scheduled.

Next Meeting Date and Time: TBD

 

Wisconsin's Dementia Friendly Communities Toolkit

Wisconsin’s toolkit, Building Dementia-Friendly Communities (P-01000) (PDF, 10.8 MB), provides information, resources, lessons learned, and the steps for building a dementia-friendly community. The toolkit is a collaborative effort between the Wisconsin Department of Health Services, the  Alzheimer’s Association of Southeastern Wisconsin, AARP Wisconsin, and local communities throughout the state that have implemented dementia-friendly projects. No matter what sector you represent--local business owner, faith leader, village/town/county government--there is something you can do to become dementia friendly!

Lending Library

The ADRC provides access to educational resources through our Lending Library. This library currently includes resources for caregivers of individuals with dementia,  Alzheimer’s disease and memory loss. All resources are free of charge to rent and include some of which are also free to keep and others that can be purchased at a discounted rate if it appears you will continually need the resource. Please call our office to find out what materials are currently available and details about the lending library program. We also accept donations if you have educational materials (books,-DVDs, etc.) pertaining to caregiving that you are no longer using and that are of good quality. Please call the ADRC of NW WI at 877-485-2372 to find out how to donate or check out an item!

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Lending Library flyer

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Resources for Professionals

Below are resources for professionals who regularly work with individuals with dementia or may interact with them in highly stressful situations. There are resources for you as well as family members and caregivers to help make your job easier and more importantly make your next interaction with someone with dementia a positive interaction for all involved. It's not going to be easy but there are many resources and training materials and opportunities available!

Watch the videos below for a few tips right off the bat about working with individuals with dementia. The first discusses dementia related behaviors and the second provides a few tips for working with individuals with dementia in a stressful situation. No matter what you do, you probably will experience one of these situations. We hope these videos spur your curiosity to discover what else you can do to work better with individuals with dementia.

Teepa Snow: Challenging Behaviors

 

 

Teepa Snow: 10 Ways To De-Escalate a Crisis (video must be view on YouTube.com)

 

Dementia Crisis Decision Tree

To increase awareness and provide guidance to community first responders and other entities that may work with individuals with dementia in crisis the Polk County Behavioral Health Department and the ADRC of Northwest Wisconsin, with support of the Dementia Crisis Grant Initiative, created a Dementia Crisis Decision Tree. Where do you refer someone with dementia and their loved ones for help in a crisis situation? What if it's not a crisis but they need non-emergency help and connection? Click here to download and print this tree to use as a resource in a pinch and know where you and the person you are serving can turn to for help.

Crisis Helplines

Helplines available for individuals in crisis, outside of normal business hours.

  • Polk County Mental Health Crisis Line: 888-552-6642
  • Burnett County Mental Health Crisis Line: 888-636-6655
  • Alzhiemer's Association Helpline: 800- 272-3900

 Alzheimer’s Association Website

The  Alzheimer’s Association provides information, resources and education on  Alzheimer’s disease and other dementias.

Approaching  Alzheimer’s : First Responder Training

The  Alzheimer’s Association provides a training-- in person (when coordinated with your local community outreach specialist) or online--for first responders called Approaching  Alzheimer’s : First Responder Training. Click here to learn more about the workshop or call the Alzheimer's Association at 800-272-3900 to find out who your local representative is. A certificate of completion is provided to each professional that completes the class.

Dementia Live

The ADRC of Northwest Wisconsin is now an approved Dementia Live provider. Dementia Live is an interactive program that provides individuals the opportunity to experience what it is like to have dementia. This is a wonderful tool for community members, caregivers, family members and professionals to utilize to gain a better understanding of what their loved one or the person they are working with is going through daily. Learn to communicate more effectively, become more aware of the sensory changes that occur with different types of dementia, and ultimately provide better care to your loved one. Because it's frightening to care for someone you don't understand. Coordinate a Dementia Live Experience/Training by calling the ADRC of Northwest Wisconsin at 877-485-2372.

 

Alzheimer's Association Healthcare Professionals Website

Healthcare professionals can get tips and resources from the Alzhiemer's Association's Healthcare Professionals webpage.

Lending Library

The ADRC provides access to educational resources through our Lending Library. This library currently includes resources for caregivers of individuals with dementia, Alzheimer's disease and memory loss. All resources are free of charge to rent and include some of which are also free to keep and others that can be purchased at a discounted rate if it appears you will continually need the resource. Please call our office to find out what materials are currently available and details about the lending library program. We also accept donations if you have educational materials (books,-DVDs, etc.) pertaining to caregiving that you are no longer using and that are of good quality. Please call the ADRC of NW WI at 877-485-2372 to find out how to donate or check out an item!

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Lending Library flyer

 

Wisconsin Alzheimer's Institute

The Wisconsin Alzheimer's Institute provides educational opportunities for physicians, nurse practitioners, physician assistants, psychologists, residents, medical students and other health care professionals to learn about the diagnosis and management of dementing disorders. Visit WAI: Education Program for more information.

Teepa Snow

Teepa Snow is one of the leading educators on dementia and the care that accompanies it, in the US and Canada. She founded a company, Positive Approach to Care (PAC), and an approach to support and engage people experiencing changes in brain functions. She created the GEMS States model for brain change. She has a number of videos--some short ones available on her website at www.teepasnow.com and some available for purchase. A few of her videos are availble for loan through the ADRC Lending Library (contact the ADRC at 877-485-2372 for more info). She also provides trainings and certifications for professionals. Click here to learn more about Teepa Snow and educational resources available.

File of Life

Medical emergencies can happen anytime. When they do, there is confusion, panic and urgency. Paramedics arrive on the scene with no information about the person in need. When seconds count the File of Life can make the difference between life and death. Does the patient have prior medical conditions? Allergies? What medications are they taking? Who do they want us to call? How do we contact their family or friends? File of Life puts these answers at their fingertips. It allows first responders to immediately begin the best possible treatment, notify loved ones, and pass this vital data on to awaiting physicians at the emergency room.

At the ADRC of Northwest Wisconsin we provide this magnet pouch for those we serve to complete and hang on their refrigerator to help them be better prepared for a medical emergency. We encourage other entities to purchase and make these available to those they serve. File of Life magnet pouches can be purcahse at https://www.folife.org/ . We have edited the information card slightly to include some additional information our Transition of Care Coalition team (made up of local home care provides, healthcare facilities and county staff) determined was also important for first responders and hospital staff to know. In addition, we have added important questions related to dementia. Contact the ADRC of Northwest Wisconsin at 877-485-2372 for more information about our revised insert.

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